Longest 20 minutes of my life. My EpiPen Experience

I don’t use our company blog for too many personal things anymore, but this one I just needed to share to the largest audience as I can to help explain what I learned about our experience and possibly help you understand allergic reactions.

Last night we experienced our worst fears in the life of an allergy kid’s parents.   I guess we knew it would happen eventually, we were just extremely proud of our 3 year track record of defending our little angel from the foods her body considers toxic.   To set the scene she is allergic to (in order of severity) Dairy, Egg, Peanuts, Tree Nuts, Shellfish, Fish, Wheat, Soy.  Based off the 3 rounds of skin testing; and backed up with a thorough blood workup we are able to assess the severity of her allergies; but the top line reaction we were hoping to never experience.  (BTW she is allergic to cockroaches based off her blood work, lol )

We can’t even begin to explain our methods of keeping her safe on a daily basis.  Everything from her own placemats at the table, to completely changing the family’s diet to be safe around her as well, to even buying our own mobile kitchen (our camper) so that we can vacation.  Take you quickly to last night.  We were at a friend’s house for dinner; and as always Jen prepared Shayla’s meal to bring with us.  She deliberately made the same items that we were going to be enjoying at our get together so she doesn’t have to feel “different”.  Made a small batch of pasta salad (quinoa pasta) Burger (bunless) Even brought safe cookies for dessert.  On the “Adult” table were chips and salsa.  The Hint of Lime Tostitos that I love so much but we never get because we know there is dairy in them.  Not sure what they need dairy for, but you learn there are a LOT of things with unnecessary ingredients in our food supply.  (How about some sandwich meat having dairy in it.. figure that one out for me) While the kids were playing in the yard we enjoyed some of those awesome chips and salsa.  As a note we do have whole corn chips normally around our house.  The organic all natural ones that have corn in them, and nothing else.  (kinda the way it should be you think) Skip to the end.  After dinner was cleared the platter of chips was still around and after seeing the other kids take a couple of chips, Shayla naturally wanted one too; she reached up and took one without us seeing.

She took one bite out of the corner of a chip.  Jen and I looked her and then at each other and said.. “She can’t have that!” Jen smacks it out of her hand then runs and grabs wipes and Shayla’s “Bag”.  In the bag is a bottle benadryl, two epipens, and her inhaler; she is never without it.  Trying to keep calm I said.  It will be fine, she just had the smallest bite of the corner of a chip.  And it’s not like she ate a piece of cheese.  It’s just the powder on the chip that might have a little sour cream dust on it..???  I expected hives; which appeared within a minute around her mouth.  I prepared for a possible vomit or something and that’s about it.  After a few minutes she ventured back into the yard to play with the kids.  Still being calm I was confident it couldn’t escalate too far.  About 15 minutes later She walked back over to the patio we were sitting and fighting for every breath… she said… “I…. need… my…. inhaler.”

We sprung into action.  As calm as can be as to not induce any traumatic anxiety; we ventured into the house where we can see she is struggling to breathe, bright red, feverish, blinking slowly, mucous pouring out of her nose, and hives.  Not to mention drooling.  We tried to administer her inhaler, but she couldn’t even breathe enough to pull that off.  We knew then it was time for the hospital and the cap was off the EpiPen.   Our hosts offered to keep Leighton while we head to the ER.  So we did and are so incredibly thankful they could.

What’s happening to us right then.  Its not about us… but my heart is in my throat, I can feel the beating of my heart in my earlobes… I can’t look at Jen because she is shaking and crying; mascara down the cheeks kind of crying.  If I look at her it would in turn make me cry and I just can’t do that for Shayla’s sake.  She needs to be as calm as possible.  Anxiety increases anaphylaxis (blood flow and pressure).  I want to give her the pen but am so scared.  Worried I’m overreacting.  Worried it wouldn’t be necessary.  As we frantically look online at the medical care facilities nearby (and open for business besides the hospital 20 minutes away); we knew the only real option was the 20 minute ride to the hospital.  Do we call the ambulance? Do we drive?  We have to drive.  We have to go now.   Jen and I both agreed I would give her the Epipen in the truck and she would drive.

20 minutes… the LONGEST in my life.  After about 4 minutes of being in the car, Shayla was struggling worse than before and extremely hot.  Fighting for every breath and not able to say a full word.  Feverish, the kind of fever you can feel from a few inches away.  I knew right then I couldn’t wait another minute.  She needed the shot and she needed it NOW.  I was terrified.  Not terrified of the shot, or administering it; rather of how much it will hurt her.  How will she scream? She can’t even catch her breath to say a word…..  I showed the Epipen to her and said “Ok sweetie, I have to give this medicine now.  Do you want me to?  She said “Yes” It’s going to bite your leg but you will feel better”   All I could think about is that it had to work.  It just couldn’t fail.  I couldn’t fail.  I can admit it today, but she wouldn’t have made it to the hospital if I didn’t.  So BAM…………. and press hard, hold for 10 seconds.  Trying to keep calm as my sweetheart looked me in the eyes with disbelief that I would be hurting her this bad.   The eyes… the ones I only see full of smiles are now looking at me in terror.  She screamed a scream I’ve never heard.  I kept pressing.  And counting.  One one thousand, two one thousand…  She kept screaming.  “Why is that hurting me so much!!!!!?????” She yelled.  I hear Jen crying while driving….

We see a police officer at a convenience store….. pull over….. Excuse me can you help us get to the hospital? Through this traffic?  “Um… I CAN’T do that?!  That’s Taboo.  If you got into an accident I wou……..”  Jen peels out of the parking lot.  (That’s about all I have to say for that waste of 40 seconds)

After about 3 minutes Shayla is breathing a little easier.  We are playing all her favorite Frozen songs off the CD permanently installed in the car radio.  I’m Singing,  Jen’s Singing,  Shayla is smiling but can’t sing.   I open the window.  I close the window.  Fresh air.. No she’s cold.   We get off the exit and follow the blue H signs….   The road is blocked off……. Paving.  Jen jumps out of the truck and asks the officer blocking the road how we are supposed to get to the hospital.  He orders a construction worker to lead us through the construction zone with his work truck.  Yellow lights blinking everywhere we drove over fresh lose pavement, manhole covers, blew street lights… Slammed the truck in park in front of the ER door and Jen ran her inside as I parked.

I walked into doors of the ER and see a completely packed waiting room.  My heart sank.  Was this the right choice?  It had to be.  They opened the doors right up and took us in moments after that.   I’m still terrified, but know we are safer now that we are in the hospital.  Shayla is progressively getting better.  She’s the hit of the ER.  Telling funny stories.  Using the barf bag as an elephant trunk and encouraging the others around to make elephant sounds with her.  Explaining to the doctor what the stethoscope is and calling it the telescope.  She also asked why they didn’t do the “pressure” thing on her arm; pointing to the blood pressure monitor.    After a couple of hour stay, the doctors prescribed some steroids and released us.

Released us????  Um I’m pretty sure you are supposed to stay and be monitored because as good as she is progressing the Epi will wear off and her toxins are still in her.  Anyway.  We live 3 minutes from our hospital and with that in mind; it was just a waiting game.  Before Shayla was released I went back to get Leighton and we returned to pick up Jen and Shayla.  The truck ride home was just about an hour.  I cried for almost all of it.  Jen sat in the back seat in between the kids car seats.  As per their request she held each of their hands and they passed out for the whole ride.  The only sounds were our sniffles.

We stayed up most of the night watching her sleep in our bed between us.  She kicked me a lot in her sleep.  She sweat ALL night.  Soaking wet sweat.  (A side effect of the Epi Pen)

There WILL be a next time.  And next time I WILL not wait, or hesitate to administer the EpiPen.  And I know Jen will not either.  It brought us the time we needed.  My only regret was not giving it to her 7 minutes earlier when we made the decision that it was in fact, serious.  They say 2 or more symptoms are enough to need to administer.  She was showing 6.  I get it.  I hope you do too.  If you have the prescription, don’t be afraid of it.  Be brave, use your head, YOU know best when you should use it. Everyone told us… you will KNOW when it’s right. Well now we do.  Then go get the help from there.

Today she is strong as can be.

20140815_092404

Food Allergy Emergency Care Plan Download. 

Heather Richardson - August 15, 2014 - 4:21 pm

So glad you are all doing ok now. I’m allergic to cockroaches too haha. I wonder what they use in the skin test to test for that. Maybe Shayla and I have Spiderman like powers or something ;)

Danielle Karsch - August 15, 2014 - 4:24 pm

Oh my god. I had tears streaming down my face reading this. I have a five year old and a two and a half year old, both with allergies. This was terrifying to read. I felt like I was there with you. Thank goodness for your quick response times and for your ability to administer the Epi. My husband is a firefighter/EMT and I’m a CNA, still terrifying when it involves our children. So happy she is feeling better today! Hugs to all of you!

Joelle Walasewicz - August 15, 2014 - 4:32 pm

As someone who has struggled with severe anaphylaxic allergies and asthma all my life, I can’t tell you how happy I am to hear that she’s ok! It’s a very scarey moment when you can’t breathe as an adult…nevermind a child! You and Jen are awesome parents and should be so proud of the job you have done to protect your sweet baby!

Jacob Bergmeier - August 15, 2014 - 4:44 pm

Much love to you all. So incredibly sorry you had to go through that.

Erica Louise Lord Edwards - August 15, 2014 - 4:45 pm

Sweet, brave little Shayla… thank you for sharing guys.

Tania PaRosa - August 15, 2014 - 4:50 pm

I’m so glad to hear that she’s ok Jerome and Jen!!! I was teary eyed reading this! As scary as it was, I’m glad you are sharing this because people don’t often understand how sick allergies can make a person or severe it can get. I hope you little sweetheart is back to normal today and I pray that she doesn’t have another episode…EVER! And I know that may not be realistic, but I hope it is. All my love to you guys!

Lynn Sobol - August 15, 2014 - 4:54 pm

Jerome and Jen…I am Amand’s Aunt… (her favorite Aunt, by the way!!)
I work at CCMC. I have seen a lot of scares, sadness, failures and successes here.
I have NEVER read and felt something as poignant and aa brutally honest and as heart-wrenching as this post.
I was crying with you as I read. Sobbing, at this ordeal you faced-together!
This touched me unlike anything else I have encountered so far here.
Your bravery to share this is beyond amazing.
God bless you all! ((Hugs))

Betania Costa - August 15, 2014 - 4:56 pm

Oh my! Tears streamed down my face as I read this. I can totally relate to the feeling of seeing your baby struggle to catch a breath. My little Ava had a severe chocking episode when she was only 9wks and after hearing from the doctors and nurses at the hospital that what I had done had saved her life I completely lost it. Waiting is never an option. When something happens to my girls I’m immediately on the move

Nancy Gaspar - August 15, 2014 - 4:59 pm

Omg! SO sscary! Glad she’s fine and everyone is ok.. (*hugs))

Daniella Ramos da Silva - August 15, 2014 - 5:06 pm

Oh my! Couldn’t help but cry! Prayed for her last night right after I read your post on Instagram.
I’m so happy she’s better. God bless guys!

Christine Kennedy - August 15, 2014 - 5:21 pm

I am so relieved to read your happy ending. What a vivid account of what your family went through.

Bruce Plotkin - August 15, 2014 - 5:23 pm

omg. so happy that she’s doing well. love to all of you.

Elaine Midolo Horn - August 15, 2014 - 5:30 pm

You just made me cry. So glad she is ok and thank you for sharing this.

Denise Pulaski Grodzicki - August 15, 2014 - 5:34 pm

Thank you so much for sharing this. I’m not a cryer and I cried reading this. I also carry Tyler’s inhaler, Benadryl and Epi with me but I have to admit I’ve been slacking alittle since things have been fine this past year. I tried not to think about the ‘what if’s’ because that is so scary to think about. Think about how much stronger you and Jen are now because of that experience!

Marlene Zipin - August 15, 2014 - 5:42 pm

wow. definitely have tears in my eyes. so so scary! but so glad to know she is ok now. :)

Melissa Anderson Morello - August 15, 2014 - 5:46 pm

Thank you for sharing, Jerome it’s a tear jerker, but there is a message. I’m so sorry you all have to to through this and continue to live in fear of when this will happen next. I will continue to pray that she grows out of it. It’s just not fair.

Amy Stern Dauphin - August 15, 2014 - 5:50 pm

OMG – your post brought chills. Thank goodness she is OK

Amanda Harris Herzberger - August 15, 2014 - 6:04 pm

Crying reading this so glad she is ok. xoxoxo

Kurt Hilmerson - August 15, 2014 - 6:18 pm

I am so glad that Shayla is same and well! You don’t know me but my 7 year old daughter has several major allergies. We have had several minor scares but have yet needed to use the EpiPen. Thank you for telling your story! I feel like I lived through the experience and learned the same lesson that you did. I know that it’s just a matter of time before my wife and I need to use the EpiPen and I will never forget this lesson. I wish you all the best in your journey with allergies.

Kate Loveland Altman - August 15, 2014 - 7:08 pm

Scariest story ever. I have tears running down my face as I’m reading this. SO thankful she is ok and praying you and Jen never have to go through this again.

Melody Harrison Esposito - August 15, 2014 - 7:31 pm

Oh my! You had me crying. This is such an important lesson. Dairy allergies are tough and the poor girl has many more. Happy to hear she is doing well now. Thanks for sharing

Karen Weiser Kelly - August 15, 2014 - 9:17 pm

I’m soooo glad she’s ok now. What an ordeal you all went through, I was hyperventilating just reading about it! Blessings to you all.

Kimberly Denney - August 16, 2014 - 1:54 am

Thank you for sharing your traumatic story to help other know that ‘Yes, this is the moment we have been training for, use the Epi-pen’. I am so glad your little girl is ok.

Cristina Santos Tomas - August 16, 2014 - 2:19 am

So scary but so glad she’s ok and am so proud of you and Jen and your bravery.
Such an important and powerful post to give parents strength

Meg Chase - August 16, 2014 - 3:16 am

Jerome, the way you tell that story paints such a vivid, painful and worrisome vision. I felt like I was experiencing your trauma with you. That being said, I am so relieved to hear she’s doing well – I love that victory cheer she seems to be doing in this picture! With your calm composure, quick response time, and team work, you and Jen surely saved her life. Being a teacher, I always have students equipped with EpiPens and thankfully have not had to use one yet. I even get uneasy when I have to practice injecting the EpiPen into an orange! I know the fear of not wanting to hurt the child and thinking, “Is it really necessary?” Before reading your story, I worried that I would, but hoped that I wouldn’t wait too long before ever having to give an injection to a child in need. Now I KNOW I will not wait for several different symptoms to occur before taking the plunge. I honestly wasn’t even aware of what symptoms to look for. This was very educational, thank you for sharing it. I’ll be sure to pass it along.

Need your classic car fix? | Engagement Session | Ferrari | Maserati

Here are a couple of teasers from one of this week’s engagement sessions

If you have to break down; make sure it’s in a Classic 1963 Ferrari 250GT Lusso and bring plenty of lipstick.

Ferrari Engagement

1

Then all you have to do is get it back home and swap it out with your 1963 Maserati 3500 GT Vignale Spyder

Couple driving a 1963 Maserati 3500 Vignale Spyder

Don’t worry, the Ferrari didn’t really break down.  :-)

Sam Chinigo - July 3, 2014 - 3:10 pm

Sick man…sick. Awesome images…

Erin Brady - July 3, 2014 - 9:26 pm

These are so amazing. Thank you so much. We had a blast!

Stephanie and Brian | Engagement Session | Hubbard Park

A peek into the charming Stephanie and Brian’s engagement session held at Hubbard Park in Meriden, Connecticut. Look closely and you will see how the light naturally cascades down through the clouds adding a crimson glow to this already perfect Autumn day. Or perhaps this glow you see is emanating from within this devoted couple. What do you think?
Studio 1923_0088.jpg

View The Rest of This Post»

Liz and Pat | Engagement Session

A peek into Liz and Pat’s engagement session held at Gillette Castle State Park, an all-time favorite location of Connecticut residents. This is yet another beautiful story showcasing nature and fashion with an adventurous approach. Studio 1923 never seems to disappoint . . . well anyone.
Studio 1923_0139.jpg

View The Rest of This Post»

Jenn and Sebastian | Engagement Session | Buttonwood Park

A peek into Jenn and Sebastian’s engagement session held at Buttonwood Park Zoo in New Bedford Massachusetts. The All-American family can be seen right here. We have the beautiful girl, the handsome guy and the two happy fur-babes. Oh and not to mention the most beautiful Fall day ever! This dynamic quadruple is just too cute for words.
Studio 1923_0098.jpg
Studio 1923_0105.jpg
Studio 1923_0101.jpg
Studio 1923_0100.jpg

I know it is difficult not to focus on the stunning Miss Jenn, especially when she was made the focal point, but notice how taken Sebastian is with his fiancé. Another perfect moment captured on camera.
Studio 1923_0102.jpg
Studio 1923_0103.jpg

The story reads: She said yes, yes, yes! And Sebastian put that ring on Jenn’s finger and kissed her like she was never kissed before. I love how Jerome recreates every special moment of an engagement.
Studio 1923_0107.jpg
Studio 1923_0104.jpg
Studio 1923_0099.jpg

A perfect ending to a perfect session. Thank you Jenn and Sebastian for letting Studio 1923 be a part of this special time in your lives.
Studio 1923_0106.jpg